We are delighted that Anna Glogiewicz has joined CILNI in this position in April, 2017. Originally from Poland, Anna has been living and working in Northern Ireland for some time and holds a Masters degree in Mathematics.
As a full member of the Chartered Institute of Payroll Professionals, Anna brings a breadth of management and payroll experience to her new position in CILNI and is looking forward to the fresh challenge of managing CILNI’s specialist payroll service. Most recently, Anna has been Payroll Manager at Brett Martin. Prior to that Anna was Group Payroll Manager at UTV Media plc for over four years where she managed several complex payrolls during a very challenging time at UTV. During her career Anna has used her teaching and organisational skills in different ways to enhance the delivery of a payroll service.
We welcome Anna to the CILNI team and know that she will lead us in offering a professional and friendly service to all clients.
CILNI held its annual general meeting on Tuesday, 21 March 2017 at the Crumlin Road Gaol in Belfast. It was pleasing to see a good turnout of members and friends at this very interesting venue.
After the necessary business of the organisation had been conducted, including the presentation of the Annual Report for 2015/2016, the meeting moved on to the more interesting parts of the meeting:
1. Our Assistant Director, Bryan Myles, presented the organisation’s Strategic Plan for 2016-2019. Entitled “Working Together to Enhance Independence”, the plan sets out the intended direction for CILNI over the current three-year period together with clear aims and objectives. The development of the plan demonstrates our continuing commitment to promoting the independence of all disabled people through the delivery of services which meet their specific needs, together with the expectations of our funding partners. To read the Strategic Plan, please click here.
2. Our good friend, Aiden McCullagh, who has been working on the development of Self-Directed Support since the initial pilot project in the Southern Health and Social Care Trust area shared with the meeting one example of how self-directed support can make a life enhancing improvement. What made it an unusually thought-provoking, moving and personal presentation was that the people benefiting from the support were Aidan’s own elderly parents.
3. Our Chairperson, Mike Hendra had recently informed the board of his intention to step down from this position which he has held since CILNI was established in 2001. In recognition of the dedication and wisdom with which Mike has led CILNI over its first 16 years, Ronan Murray (who has served with Mike as a board member since 2001) presented him with a Certificate of Service. There will be a further event very shortly, in which a more tangible appreciation (currently on order) will be presented to Mike by fellow board members and staff. We are delighted that Mike has agreed to continue serving as a member of the board of management, alongside his wife Angela.
After the meeting, a number of attendees were able to enjoy a very informative and atmospheric tour of the Gaol.
New National Minimum Wage rate and the National Living Wage rates from 1 April 2017
National Minimum Wage
The National Minimum Wage (NMW) is the minimum pay per hour most workers are entitled to by law. The rate will depend on the workers' age and if they are an apprentice.
The National Living Wage
The Government's National Living Wage was introduced on 1 April 2016 for all working people aged 25 and over, and was set at £7.20 per hour. From 1 April 2017, it will go up by 30p to £7.50.
The National Minimum Wage rates for younger workers applicable to pay reference periods starting on or after 1 April 2017 will be as follows:
• the rate for workers aged 21 and 24 will increase by 35p to £7.05 an hour
• the rate for 18-20 year olds will increase by 5p to £5.60 to £5.60 an hour
• the rate for 16-17 year olds will increase by 5p to £3.87 an hour
• the rate for apprentices will rise by 10p to £3.50 an hour
Please see the info sheet Paying Personal Assistants under the heading Being a Good Employer for more information and background.
National Insurance Contributions (NIC) Employment Allowance
The NIC Employment Allowance is an annual allowance which is available to many Employers and can be offset against their Employer NIC liability. When it was first introduced in April 2014, people employing care and support workers were specifically excluded. However the then Chancellor George Osborne announced in December 2014 that from April 2015, the government would also extend the annual NIC Employment Allowance to those households that employ care and support workers. This goes some way towards compensating for the fact that Employers can no longer claim back Statutory Sick Pay.
In January 2016, HMRC announced that this alllowance would increase by £1,000 to £3,000 from April 2016.
This allowance does not mean that you will receive £3,000 into your bank account each 6th April. Instead, it reduces the amount of Employer’s National Insurance you pay to HMRC, up to £3,000 in a tax year. So if you usually pay less than £32,000 to HMRC a year in respect of Employer’s NI, it will eliminate this bill completely – but remember you will still have to deduct Employee’s NI and PAYE from your staff’s wages and pay those over to HMRC.
If you are using a Payroll Service the allowance will automatically be applied. If you are doing your own returns using HMRC Basic Tools or other payroll software you will be prompted to put ‘Yes’ in the ‘Employment Allowance indicator’ field when you send an Employment Payment Summary (EPS) to HMRC. You will only have to do this once; once set, the claim will continue automatically from year to year.
Over the last six months we have taken forward our plan to bring the Payroll Service in-house, with the team now well settled in Beechill Road. Transferring a business of this scale was a major undertaking and particularly challenging to keep the service running smoothly over the busy Christmas holiday period. Many thanks to our all payroll users for their patience and understanding during the busy transfer time and apologies if you experienced any inconvenience or delay. We are confident that any teething difficulties have been sorted out and that we will continue to deliver an efficient, reliable service.
Last Payroll of the Year – March 2017
As we approach the end of the 2016/17 tax year, the final payroll will be due in March. It is very important to ensure the accuracy of this final payroll as changes can seriously affect the HMRC year end declarations along with your employees P60’s.
Update your contact information
The payroll service has experienced a growth in those who prefer or are willing to communicate with the Payroll Service via email. If anyone has an interest in communicating with the service by email then forward your email address to firstname.lastname@example.org or call 028 9064 8546.
CILNI is very pleased to let you know the latest version of the newsletter is now available. The January 2017 version contains updates on various important issues and some news items.
As a result of a combination of circumstances, the realisation dawned last Friday that it was 15 years since we first started operations as Centre for Independent Living, Belfast. On 5 March 2001, our first member of staff arrived in an empty room in NICVA in North Belfast.
The board of management is very pleased to announce that it appointed Bryan Myles as our new Assistant Director at the beginning of February 2016.
Bryan with Debbie Whitson, who is one of our longest serving staff members
Bryan is a professionally qualified manager with more than twenty years’ experience of managing diverse organisations in the charity and social economy sectors. He is accomplished in many areas concerning the management of staff, budgets and projects and has recent expertise in organisational development of several charities.
As CILNI Assistant Director, Bryan will assist the Director and Board of Management to implement the organisation’s strategic plan and policies. He will provide leadership, support and guidance to staff and help with recruitment and on-going support. Bryan will lead on the implementation of a number of new core CILNI projects during 2016.
We are delighted that Bryan has already been able to "hit the ground running" and we are confident that his wealth of experience wil greatly increase the organisation's management capability.
As we approach the elections to the Northern Ireland Assembly on 5 May 2016, CILNI has taken the opportunity to have meetings with the five largest political parties currently in the Assembly.We met this February with representatives of the Democratic Unionist Party, Sinn Fein, the Ulster Unionist Party, the Social Democratic and Labour Party and the Alliance Party.
Our goal has been to highlight the importance of empowering social care users through promoting independent living. We explained how most people take for granted the freedom to choose when you eat your meals, go to bed and take a shower but thousands of disabled people in Northern Ireland do not have that choice – because they rely on a Health and Social Care Trust to help with the simple tasks; in most cases, the disabled people have to fit in with what the service provider offers.
In Northern Ireland, Direct Payments are the main way in which social care users are able to manage their own personal care budget – the same scheme which also operates in Great Britain. We pointed out that, in Northern Ireland, the ratio of disabled people using Direct Payments to those receiving traditional social homecare packages is 1:10 whilst, in England, it's a much higher 1:3 ratio.
For the future, we outlined how we hope to see personalised budgets becoming more popular in Northern Ireland as the wider Self-Directed Support scheme is rolled out, giving disabled people a wider number of options, including Direct Payments. It is very clear to everyone that the full potential of independent living for social care users has not yet been realised and we indicated the barriers to the uptake of direct payments in Northern Ireland. We illustrated the transformative effect of independent living on one of our members, Michaela Hollywood, who lives in Crossgar, County Down. Her Direct Payments package enables her to live a very full and productive life with control over when and how she receives assistance.
Finally, it was pointed out how ultimately supporting independent living results in more effective social care, a potential saving of social care funds and a happier, more fulfilled and healthier life for thousands of people.
We were very pleased with the courteous and positive reception we had from all five political parties and it will be very interesting to see if any of these concepts appear in their election manifestoes and/or are promoted by the next Assembly.
Disabled people will be at the forefront of designing projects for a new £5 million UK wide research programme to explore how disabled people can live more independent lives.
The DRILL programme, which was launched in Northern Ireland on 16 September, will see disabled people working with academics and policy makers to develop research and pilot projects that will show how they, and people with long term health conditions, can be better supported to be full citizens.
The DRILL (Disability Research on Independent Living and Learning) programme is fully funded by Big Lottery Fund and will be led by, Disability Action in partnership with Inclusion Scotland, Disability Wales and Disability Rights UK. This four nation project will deliver the world's first major research programme led by disabled people.
Kevin Doherty, Chief Executive, Disability Action, said:
"ultimately this is about making a real shift. Far too often disabled people are the subject of research but not participants in its development. We want academics and others to work in partnership with disabled people to build an evidence base that will contribute to making real change."
DRILL is expecting to fund a total of 40 research proposals and pilot projects over a 5 year period. The programme which we believe to be a world first, aims to work in partnership with disabled people, academics and policy makers to build a better evidence base about approaches that enable people to live independently, which will be used to inform future policy and service provision, as well as giving greater voice to disabled people in the issues that impact them.
The criteria for funding will be decided after engagement events with people with disabilities around the UK, under the themes of peer support, autonomy, resilience and social, economic and civic participation. Disabled people and their organisations will be supported to work on their bids in partnership with academics and policy makers.
Speaking at the Launch, Philomena McCrory, Director of the Centre for Independent Living NI said:
“The Independent Living Movement is based on the firm belief that disabled people are the experts on how we achieve independent living and fulfil our individual potential. The DRILL Programme is therefore of great significance as we move our philosophy and ethos forward through the co-production of new research – disabled people taking the initiative individually and collectively in designing and promoting more effective solutions to the barriers we face in everyday life.”
Dr Bronagh Byrne of the School of Sociology, Social Policy and Social Work, Queen’s University Belfast added:
“Building a truly inclusive society needs to be underpinned by a strong evidence base with disabled people at its core. I look forward to the DRILL Programme producing key research from across Northern Ireland, Wales, Scotland and England in partnership with disabled people, academics, service providers and policy makers – research that is committed to and guided by the articles and principles of the United Nations Convention on the Rights of Persons with Disabilities.”
The first round of funding is expected to be launched in April 2016. For information on DRILL please visit www.drilluk.org.uk
Self Directed Support is about to be introduced in Northern Ireland and will be rolled out progressively to all disabled people.
What is Self Directed Support?
Self Directed Support is a new initiative for delivering social care, led by the Health and Social Care Board, along similar lines to those followed in England and Scotland over the last few years. The concept, which is being adapted to the context and delivery channels existing in Northern Ireland, offers disabled people and their families a more informed choice in which their care they require is provided.
Self Directed Support (SDS) relates to the way that disabled people and their families can choose the way in which care is provided and allows for greater control and more flexibility by disabled people and their families over a personal budget available through the 5 Health and Social Care Trusts (HSCT(s)). It includes a number of options for getting support.
The individual’s personal budget can be:
- Taken as a direct payment (funds provided by your HSCT),
- A managed budget (where the HSCT holds a budget, but the disabled person is in control of how it is spent),
- The HSCT can arrange a service, or
- The disabled person can choose a mixture of these options.
How does it work?
The introduction of SDS means that once a Health and Social Care Trust (HSCT) agrees that a disabled person needs social care support, they can work together with their key worker to agree how that care is to be provided i.e. the way that best meets the disabled person’s assessed needs.
If the disabled person you care for needs help to organise their support they can ask the Trust, family members or a friend to help with this. CILNI can provide advice and support on how this can best be achieved.
What are SDS’s advantages?
The aim of SDS is to promote independence by offering more flexibility on how services are provided to disabled people who are assessed as being eligible for social care support.
SDS enables disabled people to take more control over decisions which affect their
lives. It is intended to support independent living by giving disabled people more choice, control and flexibility over their own care.
How can SDS benefit you?
SDS allows you to choose what type of support you receive and where and
when you receive it. For example you might want to:
- Have your support staff visit at a time that you choose.
- Employ your own personal assistant and choose how and what time they work for you.
The Southern HSCT has been running a SDS pilot, to see how SDS could benefit you or someone you know, read Jude’s, Ruth’s and Wendy’s stories.
How does it work?
The Health and Social Care Board has produced a video entitled “The Self Directed Support Pick ‘n’ Mix” explaining how Self Directed Support could work for you. You can watch the video on our Videos and Podcasts page.
Alternatively, you can read the Transcript of the Pick ‘n’ Mix video.
You can also view or download the frequently asked questions (FAQS) for:
- Service Users
When will SDS be available?
SDS conducted an Equality Impact Assessment consultation over a 12 week period which ended on at the beginning of May, 2015.
Positive feedback was received and following further analysis, it was planned to roll out to roll SDS out throughout the whole of Northern Ireland
Further information on the consultation is available to view or download from the Previous Consultation section of the Health and Social Care board’s website and the full Equality Impact Assessment document will be published when completed.
What if you are happy with your current support arrangements?
You do not have to change your own support if you prefer not to. You can have support arranged by the Trust, continued to use Direct Payments on their own, or you can have a mixed package where you direct some of your support.
SDS provides a menu of options which offers you more choice, greater control and more flexibility over the way your care and support needs can be met.
A series of information days entitled “SDS Stakeholder Events” have been taking place/will take place throughout the 5 HSCT areas:
- 28 May – Omagh (Western HSCT)
- 10 June – Downpatrick (South Eastern HSCT)
- 15 June – Ballymena (Northern HSCT)
- 29 June –Craigavon (Southern HSCT)
More information on Self Directed Support
For more information on Self Directed Support, speak to your key worker in social services or contact CILNI.
On Wednesday, 29 July 2015, CILNI was delighted to host a visit to its head office by representatives of ILF Scotland, the organisation which will provide ongoing support to ILF users in Northern Ireland. Two members of the senior management team, Peter Scott (Chief Executive Officer) and Harvey Tilley (Operations Manager) met with members of the board and staff of CILNI to explain how they have been established and would operate to support disabled people now and in the future.
Peter Scott, CEO, explaining the workings of ILF Scotland to CILNI. Harvey Tilley, their Operations Manager, is seen sitting to the right of Peter.
On 19 of May 2015, recipients of support from the UK wide Independent Living Fund (ILF) finally got the result for which they have been hoping! This will remove the high level of uncertainty and anxiety experienced by all ILF users since 2010.
We had known for 5 years that UK Government’s Department for Work and Pensions (DWP) was closing the ILF, and from 1 July 2015 the ILF will be devolved to the devolved administrations and local authorities in England.
In a written statement to the Assembly, the NI Minister at the Department of Health, Social Services and Public Safety, Simon Hamilton, said: "In Northern Ireland, responsibility and funding for the administration and payment of ILF users will transfer from the Department of Social Development to my Department. We’ve carried out a public consultation on how ILF users in Northern Ireland would be best supported after the closure of the ILF at the end of June 2015 by the UK Government. It was clear that the majority of respondents preferred Option 2 (i.e. to form a discreet successor body to the ILF).
I have liaised closely with my counterpart in the Scottish Government, Health Secretary Shona Robison, and we have reached an in-principle agreement that ILF payments for users in Northern Ireland will be administered through the newly-created Scottish system. This is the most cost-effective solution to ensure that ILF recipients in Northern Ireland continue to benefit, and I am pleased that we have been able to work with the administration in Scotland to achieve this."
Members of the ILF User Group NI and supporters (including CILNI Director Philomena McCrory on the front row) meeting the Minister on 19 May 2015 to hear the announcement in person.
The Scottish Government’s Health Secretary Shona Robison said: "The new Independent Living Fund Scotland company (ILF Scotland) has been established by Scottish Ministers to deliver services to the 2,900 existing users of ILF in Scotland from 1 July 2015. I am delighted that our agreement with Northern Ireland DHSSPS will mean that ILF Scotland will provide the same high quality service to Northern Ireland’s 612 existing ILF recipients."
Services will continue to be provided on the same basis and in line with the comprehensive series of policy documents which set out policy and procedure under which the UK ILF has operated previously.
Minister Hamilton added: "I am confident that recipients of the ILF in Northern Ireland, their families and carers will welcome this important development which underscores my commitment that my Department would do all that it could to ensure that ILF recipients in Northern Ireland would not be disadvantaged by DWP’s decision to close the fund."
To read the Minister's written statement, click here.
This is a fantastic result for all those who campaigned so actively and effectively to ensure that the current level of ILF support remained in place for ILF users in Northern Ireland. This will remove In particular, huge credit must go to the ILF Users Group NI which was so ably organised by Niqi and Charles Rainey. It is excellent example of what can be achieved by a user-led organisation formed by highly motivated disabled people, their friends and supporters. It is also pleasing to see how the group was strongly supported by a number of other disablity organisations including CILNI, Disability Action, MS Society NI and Mencap NI.
If you wish to get in touch with the ILF User Group NI, please contact:
Charles and Niqi Rainey, ILF User Group NI
Phone: 07770 430441
Speaking at the South Eastern HSCT SDS Stakeholder Engagement event in Downpatrick on 10 June 2015, Geraldine Fleming, the SDS Project Team lead from the Health and Social Care Board gave an assurance that a provision for the costs of Workplace Pensions was being included in the cost of employing personal assistants as part of the model being used for the introduction of Self Directed Support. Direct Payments is an integral part of the options which will be available under to disabled people under Self Directed Support. (See separate news article on Self Directed Support.)
It is very good news that the problem of funding Workplace Pensions is being addressed at a high level within the Health and Social Care Board. Geraldine also confirmed that they were aware that, in addition to the basic cost of the Employer's pension contribution, there will be considerable additional costs arising from auto enrolment and registration, setting up and administering the pensions.
CILNI will now watch to see if the “provision” made by the Health and Social Care Board, operating through the 5 Health and Social Care Trusts will be sufficient to meet the full cost of Workplace Pensions.
The complex requirements and significant costs of Workplace Pensions Is a real worry for disabled people who employ personal assistants to meet their care and support needs.
We were delighted that Radio 4's Money Box programme chose to lead with this important issue on their programme on 23 May 2015 and followed it up with an update on Saturday, 30 May 2015, to which CILNI made a contribution. A longer interview had been recorded in Belfast the previous day but, unfortunately, much of the content explaining the different arrangements in Northern Ireland and our particular problems, did not survive the final edit. Both programmes will be available to listen to on the BBC iPlayer for some time.
BBC Radio 4 have now followed it up with a 30 minute Money Box Live special on the subject of auto enrolment for Workplace Pensions at 3 PM on Wednesday, 17 June 2015. You can listen to this programme on the BBC iPlayer or by clicking here.
This new Government Workplace pensions initiative, to ensure that people to provide for their retirement, could potentially have a big negative impact on the existing policy of providing direct payments to disabled individuals. Unless adequate funding is made available, the 2 policies could potentially be in direct conflict with the danger that many disabled people will no longer be able to lead independent and active lives. This in turn will result in an increased costly demands on the NI health and social services. Major benefits to both disabled individuals and society as a whole will be lost as a result of any false economy in failing to adequately fund these additional pension costs. (The initial cost of funding workplace pensions will be relatively low but, as the contribution rates rise progressively over coming years, the problem will magnify.)
CILNI has been flagging up this important issue for several years now and it would be good to get an official assurance that full funding will be provided in Northern Ireland to meet the costs of auto enrolment and registration, setting up and administering workplace pensions. Otherwise there is a real danger that direct payments may cease to be an attractive and/or or even viable option.
The law on workplace pensions has changed. All Employers are now legally required to provide and make payments into a pension for certain workers.
“Does this apply to me?” If you employ a Personal Assistant it almost certainly does. Read onto find out.
Auto Enrolment and Workplace Pensions
A new law means that every Employer, with at least one paid Worker/Personal Assistant, will be required to automatically enroll some or all of their Personal Assistants (PAs), depending on age and salary level, into a pension scheme that meets certain minimum standards. Some PAs will also have the right to ask their employer to enroll them into the pension scheme. This is called automatic enrolment.
Depending on the worker’s age and salary level, Employers may be required to make contributions to this pension scheme, adding to the contributions made by their PAs.
Auto Enrolment is being phased in between now and 2018 with Employers being allocated a “staging date” which sets out when the Employer must have a pension scheme in place. Employers will receive a letter from the Pensions Regulator to let them know their staging date 12 months in advance. (Note for CILNI Payroll Users – if you get a letter advising of your staging date please forward immediately to CILNI or direct to Pauley Business Services)
You can also find your ‘staging date’ by clicking on the following link: http://www.thepensionsregulator.gov.uk/employers/tools/staging-date.aspx
The Pensions Regulator, a public body set up by the UK government to regulate all UK workplace pension schemes, has provided brief information entitled “The essential guide to automatic enrolment” for people who employ workers for their own care and support. To read or download the guide, click here.
Alternatively you can get it by going to the Pension Regulator’s own website at: http://www.thepensionsregulator.gov.uk/docs/The_essential_guide_for_people_who_employ_their_own_care_and_support.pdf
The purpose of this article is only to provide you with some initial information regarding automatic enrolment and Workplace Pensions. More detailed information will follow shortly on this website and in the form of new information leaflets/sheets.
CILNI Payroll Service
The CILNI Payroll Service will be able to provide service users with all the support and guidance that they need and take you through the process step-by-step. The service has a small number of service users with a staging date in the next six months and we will be taking the opportunity during this period to conduct a pilot study during which the payroll service team will be able to learn exactly what needs to be done with regard to enrolment, how it will work within the payroll, the work needed to set up pension schemes, the records to be kept and the completion of online returns.
Once we know exactly what is involved, will be able to fine tune our systems. Unfortunately, the extra work needed will inevitably give rise to additional costs for the payroll service, both for the initial enrolment of PAs and the setup of the pension schemes. As the CILNI Payroll Service is run on a full cost recovery basis, and we would not be allowed to cross-subsidise it from our core statutory funding, this will probably result in an increased charge for the service.
We will update you further once we have been able to assess the full cost implications of the new Workplace Pensions on the CILNI Payroll Service.
Important note: If you do your own payroll, or if you just want more information at this stage, the Pension Regulator has created a section on their website dealing with the most common questions on automatic enrolment and Workplace Pensions. To see these questions, please click here. Http://www.thepensionsregulator.gov.uk/automatic-enrolment-enquiries
We have added two new videos produced by CILNI in which service users describe the significant benefits they have gained from using Direct Payments. They are both relatively short and well worth a look.
The two new videos are:
- “Good Days” – Norma and Billy's story (5mins 27secs).
- “Confidence and Independence” – Jane’s story (8mins 40secs).
CILNI is delighted that, so far, everyone who has seen the videos has said how inspirational they find them. To see them, click here.
If you haven’t already seen it, you may also find it interesting to have a look at another video produced recently by CILNI entitled “Getting My Life Back” – Laura's story (5mins 58secs).
It is wonderful that we continue to receive generous support of the Perennials Rugby Club, an over 40s team based in Belfast. on Sunday, 7 September 2014, our Treasurer, Bill Riddall, and David Gray collected a cheque for £1500 after the first match of the season.
The match against Belfast Harlequins took place at the Quins' Deramore Park ground in Belfast on a fine early autumn day and was played over 3x20 minute periods. An enthusiastic crowd enjoyed an entertaining match with moments of real skill, timely passing and bursts of genuine speed. Many players had moments of glory reminiscent of younger years. Perennials eventually emerged the winners by 6 tries to 5.
Photos below: Bill & David watching the match, Bill receiving the cheque from Colin McKee (the Perennials' president) and the pre-match photo.
We are delighted to announce that we now have available the following information leaflets explaining how Direct Payments can help specific categories of disabled people.
The new leaflets are (click the title to view):
- Direct Payments for Disabled Children and Young People
- Direct Payments for Older People
- Direct Payments for People with Mental Health Needs
- Direct Payments for People with a Learning Disability
- Direct Payments for People with a Physical Disability or Sensory Impairment
If you would like you would like a hard copy of one or all of these information leaflets, please contact CILNI Head Office in Belfast.
The High Court granted permission on 3 May 2013 for a full hearing of the judicial review challenge to the Government’s introduction of more stringent qualifying criteria for mobility benefit.
By agreement between the Government’s lawyers and the Court, only one case is going ahead at this stage. It involves a disabled person who can walk only a few metres with a stick and is otherwise dependent on a wheelchair. He was assessed as eligible for the high rate of the mobility component of Disability Living Allowance (DLA) last year and used this to purchase a Motability vehicle. It is feared that, along with many others, he may lose this benefit under the new Personal Independence Payment (PIP) regulations under which the distance which the claimant is assessed as being virtually unable to walk is reduced to 20 metres (as opposed to 50 metres under DLA).
A representative of Public Law Solicitors representing be claimant said “I am very pleased that the court has found that this case deserves a full hearing. The higher rate of mobility benefit can make an extraordinary difference to a disabled person’s life. But the Government failed to mention the reduction to 20m in their consultations and so those who might be affected did not have the chance to put their case and explain how devastating the consequences will be.”
CILNI will continue to monitor the legal action and update the website with any further developments.
From 8 April 2013, the UK government is introducing a new benefit called Personal Independent Payment (PIP) to replace Disability Living Allowance for eligible working age people aged 16 to 64.
There are currently no plans to replace Disability Living Allowance for children under 16 and people aged 65 and over who are already receiving Disability Living Allowance.
The UK government says it is committed to supporting disabled people to continue to lead independent and active lives and that it recognises that disabled people can face additional challenges. The PIP is, like the Disability Living Allowance, to be an extra cost, non-means tested disability benefit for disabled people. The PIP is to be based on an assessment of individual need. The new assessment will focus on an individual’s ability to carry out a range of key activities necessary to everyday life. Information will be gathered from the individual, as well as healthcare and other professionals who work with and support the disabled person. Most disabled people will also be asked to a face-to-face consultation with an independent assessor is part of the claim process. The PIP criteria will be different in certain respects from the criteria previously used for the Disability Living Allowance. For example, under the latest draft PIP regulations published on 9 January 2013, the enhanced mobility component for physical difficulty getting around is the inability to walk more than 20 metres (a far shorter distance than the 50 metres proposed previously). Under the enhanced mobility component of Disability Living Allowance, the criteria was more flexible, ranging from being virtually unable to walk, experiencing great discomfort when walking, that the exertion required to walk would constitute a danger or likely to lead to a serious deterioration in health, or the person is both deaf and blind.
From June 2013, all new claims from disabled people will be assessed under the criteria for the PIP.
Existing Disability Living Allowance recipients who are aged 16 to 64 on 8 April 2013 will be affected by the introduction of PIP, even if they have an indefinite or lifetime award of Disability Living Allowance. Existing Disability Living Allowance recipients should receive a letter containing more information in February and March 2013. Initially, they will be affected if they report a change in their health condition or how their disability affects them, they reach the end of an existing award of Disability Living Allowance or if the recipient reaches the age of 16.
From 2015 onwards, the remaining recipients of Disability Living Allowance will be contacted.
There is no automatic transfer from Disability Living Allowance to Personal Independence Payment. All Disability Living Allowance recipients will have to be reassessed under the PIP criteria.
By introducing this replacement benefit, the UK government is seeking to achieve a 20% reduction in the cost of PIP as compared with the current cost of Disability Living Allowance. It is estimated that up to 500,000 disabled people who currently receive Disability Living Allowance will not qualify for support under Personal Independence Payments. Yet again, this is another government instigated reform which will add stress and uncertainty to the lives of disabled people – particularly as the Disability Living Allowance was widely viewed by disabled people as one of the fairest and least-stigmatised benefits available.
Further information on the Personal Independence Payment can be found on the Nidirect Government Services website by clicking here or on the UK Department of Work and Pensions website by clicking here.
In order to introduce the change in Northern Ireland, enabling legislation to adapt it to Northern Ireland specific needs has been introduced to the Northern Ireland Assembly at Stormont as part of the Welfare Reform Bill. The Bill was introduced by the Social Development Minister, Nelson McCausland, on 1 October 2012 and received its 2nd reading on 9 October 2012. The Bill has now entered the committee stage working to a deadline of 22 January 2013. To monitor the progress of the Welfare Reform Bill on the Northern Ireland Assembly website, click here.
Disability Rights UK have also produced a useful factsheet available by clicking here.
Under new legislation elderly customers and those with special needs are entitled to additional assistance from electricity, gas and water companies. Known as Customer Care and Critical Care registers, these records have always been maintained by utility companies but in recent times have become a statutory obligation.
Customers who are registered for a Customer Care scheme can avail of additional services such as bills in different formats like Braille or large print, adapted equipment and password schemes to help identify representatives from the utility company who might visit their home.
Critical Care Registers are for customers who rely on electrical equipment or on a water supply for their day-to-day care. This service is provided by Northern Ireland Water (NI Water) and by Northern Ireland Electricity (NIE), who own and maintain the electricity and water infrastructure for everyone, regardless of who bills the consumer for actual usage of these utilities.
Medical equipment such as oxygen concentrators, home dialysis machines and vital signs monitoring equipment all rely on these essential services, and signing up for a Critical Care Register allows customers who depend on equipment like this to have their contact details prioritised by the companies involved.
This becomes particularly relevant when there are service outages. For example, in the event of a scheduled interruption to the electricity supply NIE will contact a registered consumer at least three days before the interruption with details of how long the electricity is likely to be off; in the event of a power cut or other unexpected interruption the customer will be kept similarly updated. Likewise, if the water is to be turned off for more than four hours NI Water will give customers 48 hours notice and, in the event of a prolonged loss of service, will arrange an alternative water supply.
CILNI would encourage all disabled persons and/or persons of a pensionable age to register.
For further information on how to register, and details of which services are offered by which company, please contact the service provider directly. Full contact details are provided below this article.
Research by the Consumer Council has shown however that there are relatively low levels of registration for these services throughout Northern Ireland even though utility companies are obliged by law to keep registers of customers who are of pensionable age, disabled and/or chronically ill. Accordingly, the Consumer Council is keen to ensure that all those entitled to these services avail of them.
In an effort to find out the problem, the Consumer Council is also asking if you could take a a few minutes to complete a questionnaire for them to inform the future work in this area and, if necessary, take up specific issues with the utility companies The survey can be found at http://www.surveymonkey.com/s/SMVKR96 or by clicking here. It should take a couple of minutes to complete and your response will not be attributed to you – unless you indicate otherwise. Your co-operation would be greatly appreciated by the Council
Contact Details for the utility companies:
Power NI (Customer Care)Telephone: 08457 455 455 Minicom: 08457 147 128 E-mail: email@example.com Website: www.powerni.co.uk Address: Power NI 120 Malone Road Belfast BT9 5HT
NIE (Critical Care)
Telephone: 08457 643 643
Minicom: 08457 147 128
Northern Ireland Electricity
120 Malone Road
Belfast BT9 5HT
Airtricity (Special Assistance)Telephone: 0845 601 9093 Fax: 028 9043 7750 E-mail: firstname.lastname@example.org Website: www.airtricity.com Address: Airtricity Supply (NI) Ltd 2nd Floor 83-85 Great Victoria Street Belfast BT2 7AF
Budget EnergyTelephone: 0800 012 1177 Fax: 0287 1275099 E-mail: email@example.com Website: www.budgetenergy.co.uk Address: Budget Energy Ltd Energy House, 30-32 Ballinska Road Springtown Industrial Estate Derry/Londonderry BT48 0LY
Electric IrelandTelephone: 0845 600 5335 Email: firstname.lastname@example.org Website: www.electricireland.com Address: Electric Ireland Forsyth House, Cromac Square Belfast BT2 8LA
Airtricity Phoenix Supply Ltd (Energy Care Scheme)Telephone: 0845 900 5253 Emergency number 0800 731 4710 Minicom: 028 9055 5801 E-mail: http://www.airtricitygasni.com/contact-us/ Website: http://www.airtricitygasni.com/at-home/help-and-advice/phoenix-energy-care-scheme/ Address: Phoenix Supply Ltd 197 Airport Road West Belfast BT3 9ED
Firmus Energy (Firmuscare scheme)Telephone: 08456 08 00 88 Textphone/Minicom: 08456 03 10 08 E-mail: email@example.com Website: www.firmusenergy.co.uk Address: firmus energy Kilbegs Business Park Antrim BT41 4NN
Northern Ireland Water (Customer Care Register)Telephone: 08457 440088 Typetalk: 08457 440088 E-mail: firstname.lastname@example.org Website: www.niwater.com Address: Northern Ireland Water PO Box 1026 Belfast BT1 9DJ
Northern Ireland Independent Living User Fund User Group
This Important local user group Issued a briefing paper entitled "The Future of the Independent Living Fund in Northern Ireland". To read the paper and/or print a copy, please click here.
The Department of Health, Social Services and Public Safety announces the reform of Adult Care and Support
The Department takes the view that he Northern Ireland population is getting older, and while this is a cause for celebration, they know that more of us will need care and support as we grow older. People today also have different ideas and expectations about the care and support they need, and increasingly want control over how their needs are met. All this is happening in a constrained financial climate.
For this reason, the Department of Health, Social Services and Public Safety says that it will undertake a process to reform care and support services in Northern Ireland. In NI, the Department provides or secures the majority of care and support services through adult social care, which is part of the health and social care (HSC) system.
Adult social care is available to any adult who requires assistance due to disability, vulnerability, illness, incapacity or old age, and is designed to promote independence, social inclusion, safeguarding and wellbeing. It also includes services that are provided for those people who care for family members or friends.
Examples of services that are provided through adult social care include:
- Day care
- Domiciliary care (care in the home)
- Nursing home care
- Residential home care
- Meals on Wheels
- Social work
- Provision of equipment
Other government departments also provide services which can support people to lead more independent lives, and make up part of the care and support system. For example, services provided through the Department for Social Development (DSD) include:
- Benefits (Disability Living Allowance (DLA), Attendance Allowance and Carer’s Allowance)
- Housing Adaptations (minor and major changes to the home such as rails or hoists)
- Supported Housing (support at home to help people live more independently)
The reform process will have 3 stages:
1. A discussion document about the future of care and support in NI;
2. A proposals document setting out a range of option for the future;
3. A final strategic document setting out the planned direction of care and support services in NI.
Stage 1 – Consultation on "Who Cares? The Future of Adult Care and Support in Northern Ireland"
The first stage of the reform process is now underway. The discussion document "Who Cares? The Future of Adult Care and Support in Northern Ireland" is now available via the link below. A shorter, more accessible version of the discussion document is also available via the link, and an Easy Read version will be made available shortly. A response proforma to help you set out your views is also accessible on the Department’s website or by clicking below; alternatively, you can fill out and submit the online questionnaire.
The Department also running a number of events throughout the six month period of public consultation. (A list of events is available on the Department’s website.) Attendance at the events is free; if you have any access or dietary requirements (for example, you require Braille copies of papers or have a nut allergy), you need to pre-register with the Reform Team using the contact details below.
Alternatively, if you are a member of a local organisation or group and want to discuss the issues raised in the consultation at a group meeting, a stakeholder pack is available on the Department’s website to assist you.
For more information, visit the Department’s website by clicking here orcontact the reform team at:
Reform of Adult Care and Support Team
Room D3.7 Castle Buildings
Belfast BT4 3SQ
Tel: 02890 765630
Fax: 02890 765621
Textphone: 02890 163426
The Department of Health, Social Security & Public Safety has issued guidance on its website to the five Health & Social Care Trusts on the interim arrangements to be followed regarding direct payments for persons who lack "capacity to consent".
To read the guidance click here.
These interim arrangements have become necessary following a judicial review in 2011 which highlighted that the Northern Ireland legislation governing direct payments in that the legislation does not currently permit the making of direct payments for care to a person who does not have the mental capacity to consent to the making of such an arrangement.
It is the Department's intention to amend the Carers and Direct Payments Act (Northern Ireland) 2002 to allow another person to receive direct payments on behalf of a disabled person who lacks capacity to consent to such payments. This will of course sort out the matter properly so that, as in Scotland, England and Wales, all disabled people with needs in Northern Ireland can become eligible to benefit from the direct payment system. It is estimated however that it may take at least two years for the existing act to be amended.
The Department of Health, Social Security & Public Safety has a page dedicated to direct payments on its website at: http://www.dhsspsni.gov.uk/index/hss/ec-community-care/directpayments-about.htm
Consultation on a disability strategy entitled 'A strategy to improve the lives of disabled people – 2012 to 2015'
Centre for Independent Living NI welcomes the recent launch of the consultation on the long-awaited Northern Ireland Executive’s Draft Disability Strategy. This is an important milestone in promoting the rights of disabled people in Northern Ireland and it will be important that we take the opportunity to have our say in the consultation process.
In the document, the Executive states that it is committed to delivering on the requirements of the UN Convention on the Rights of Persons with Disabilities (UNCRPD). The proposed strategy has been shaped by the recommendations of the Promoting Social Inclusion (PSI) Working Group’s report on Disability1 which is the most significant piece of work so far undertaken by government in Northern Ireland in respect of disability. The recommendations in the PSI Report on Disability outline the actions required to address the identified inequalities experienced by people with disabilities and to tackle the barriers that disabled people continue to face in our society.
This strategy is intended to cover all types of disability, children, young people and adults and, where indicated, also addresses the needs of families and carers of people with disabilities. It is important that the diversity of disability is recognised and that Government acknowledges that there are people who will require a greater degree of support than others to participate fully in social, economic, political and cultural life.
The document sets out the vision as - A future where disabled people contribute to and benefit from the cultural, social, political and economic life of Northern Ireland on an equal basis as others. The context of the purpose of the UNCRPD is also highlighted.
The goals of the strategy, as set out in the PSI report, on Disability relate to:
• Choice and Control
• Early Years and Family Support
• Transitions to Adulthood
• Independent Living
• Employment and Employability
• Information and Communication
• Bringing About Change
CILNI is particularly pleased that ‘Choice and Control’ and ‘Independent Living’ are highlighted as two of the key Goals in the Strategy and we look forward to contributing to the discussion on how these goals can be achieved.
Copies of the document and how to respond along with dates for consultation events are available from: http://www.ofmdfmni.gov.uk/index/equality/disability.htm